Osama Abdali
When Osayd was born as a severely disabled child, our life was changed in a way we could never have imagined. Every thing, every hope was shattered and all we knew was that we had to take the best possible care of Osayd while he is with us. Osayd is now a handsome and tall five year old boy with an undiagnosed neurometabolic degenerative brain disease. He is non-verbal, non-mobile, cortically blind and has a severe seizure disorder. He is medically fragile, g-tube fed and completely dependent on others for his daily needs.
Osayd was not even two years old when he was referred to palliative care. We had no idea at that time how we would manage each and every bit of Osayd's care and who would help us take care of his complicated and frequently changing requirements. We were so overwhelmed physically and emotionally, and were looking for a break. Then something called "Roger's House" came up as a blessing for us to help in coping with Osayd's situation. It gives us not only respite but all the possible support, love and care to go through the difficult times. We cannot express in words what Roger's House is for us. It came as a blessing when Roger's House was built three years ago. We knew from CHEO that there was a pediatric palliative home being built for families in need but couldn't realize at that time that it would be as great a facility for special need families as it is today. Whenever Osayd goes to stay at Roger's House, it gives us a huge sense of relief and peace to know that he is in good hands and being taken care of just like home. We are glad there is a home outside home for Osayd.
My wife Jawaria and I will never be able to find the words to thank enough everyone involved with Roger's House. Thank you.
